Irene Tuffrey-Wijne (RN, PhD) is Professor of Intellectual Disability & Palliative Care at Kingston University & St George’s University of London. She has close collaborative links with Maastricht University (Netherlands). She has extensive clinical experience in both intellectual disability and palliative care services.
Since 2001, Irene has led a programme of research focusing on intellectual disability, cancer and palliative care. She has published widely and presented her work in the UK and across the world, and is recognised as the leading international expert in the area of palliative care for people with intellectual disabilities. Inclusion of people with intellectual disabilities as study participants and as salaried co-researchers is a key part of her work.
Irene is a founding trustee of the UK based (but international) Palliative Care of People with Learning Disabilities Network, and chair of the Reference Group for Intellectual Disabilities of the European Association of Palliative Care.
Alex Broom is Professor of Sociology and Director of the Sydney Centre for Healthy Societies, Faculty of Arts and Social Sciences, The University of Sydney. He is recognised as an international leader in sociology, with a specific interest in health. His work takes a person-centred approach, qualitatively exploring the intersections of individual experience and social, political and economic context.
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